These are chat archives for nightscout/intend-to-bolus

8th
Jun 2015
Holger Sanft
@holgi13
Jun 08 2015 07:44
Sorry - I forgot the pics from the Dana battery ...
20150605_164530.jpg
20150605_164611.jpg
20150605_164636.jpg
Holger Sanft
@holgi13
Jun 08 2015 07:50
Worldwide, there are no comparable battery, this battery will be made exclusively by SOOIL in Korea
my post from june 5. (this is Not a normal battery 3,6V Lithium !!! I had the Dana-R in my hands, the +/- pol contacts all together on front side , not as normal battery on front and end. Please look at the pics. The battery cover had no contacts, the contacts only inside the pump. I will make today same better pics of the pump and post it here.)
Fokko Driesprong
@Fokko
Jun 08 2015 09:15
Why on earth would you use such a battery..
Matthias Granberry
@mgranberry
Jun 08 2015 12:56
Money. They are extracting rent on the marked-up supplies. Same with the reverse luer, although it might be to combat counterfeiting in Asia.
diabeticgonewild
@diabeticgonewild
Jun 08 2015 15:53
Bleh had GI problems all morning even during physical therapy. At a jam packed lab at the cancer hospital cause that's where my GI doctor is. She wants to test me for the celiac gene cause my labs came back positive for celiac antibodies but nobody knows for sure cause I get antibodies from thousands of people every 2 weeks with intravenous immunoglobulin. Fun
I haven't took any opium either and I should have before I left for the lab...
diabeticgonewild
@diabeticgonewild
Jun 08 2015 17:03
Damnit they couldn't draw from anywhere even arterial stick and now I have to go to my doctors office to get an order to access my port and then go to another part of the hospital 💩
Paul Andrel
@stavlor
Jun 08 2015 17:03
Eek, doesn't sound like fun
Holger Sanft
@holgi13
Jun 08 2015 17:07
Hang on, it can only get better
diabeticgonewild
@diabeticgonewild
Jun 08 2015 17:11
LMAO yeah I'm waiting for them to put in the order. I'm bored. Thankfully I have had a port for like 3 years. 5 years are when they have to be replaced...
At least I'm not doing plasma exchange/plasmapheresis which is like dialysis cause I would have an extremely unsexy in dwelling central line in my neck or chest...or both
I hate plasma exchange
Done plenty of this today 💉
Holger Sanft
@holgi13
Jun 08 2015 17:20
Sounds terrible - how do you endure that all :-(
diabeticgonewild
@diabeticgonewild
Jun 08 2015 17:21
IDK...
diabeticgonewild
@diabeticgonewild
Jun 08 2015 17:26
still waiting for triage nurse or whatever to put in the order
diabeticgonewild
@diabeticgonewild
Jun 08 2015 17:56
And still waiting 🙀
Paul Andrel
@stavlor
Jun 08 2015 17:59
heh, well i hope for your sake they get their act together
diabeticgonewild
@diabeticgonewild
Jun 08 2015 18:04
So they were like have to get chest X-ray to confirm placement before they access it at cancer hospital
I kind of have to do it cause I will be in the same situation again if my GI doctor wants labs
diabeticgonewild
@diabeticgonewild
Jun 08 2015 18:13
Cause they haven't been able to get it anywhere except my port for like months now
diabeticgonewild
@diabeticgonewild
Jun 08 2015 18:22
I'm hoping to be out of here in a few hours...I want to lie down but I can't but they do have recliners
Yeah triage nurse sent an email to my doctor and her physician assistant so I can get the chest X-ray...eventually
Mikyla
@divishinating
Jun 08 2015 18:31
Hi, I'm trying to figure out how to get Carelink to give commands to my pump. It's a 2008 - 723 Medtronic so I'm thinking it may be old enough that it might work. I have the Carelink decoding master downloaded, but I can't figure out what to do with the files once it's unzipped. Help!
diabeticgonewild
@diabeticgonewild
Jun 08 2015 18:32
At the present time you have to install either Ubuntu or Raspbian onto a Raspberry Pi or other prototyping board with a carelink stick attached to it
I have a working image that uses a small wifi dongle if you want to download jt
  • it
This is the wifi stick you will need
I have OpenAPS installed on the image
Mikyla
@divishinating
Jun 08 2015 18:47
Ok so I have to buy a Rasperry Pi before I can do anything else? That I can do! Thank you diabeticgonewild.
diabeticgonewild
@diabeticgonewild
Jun 08 2015 18:50
Raspberry Pi 2...there's a kit that you can get that @scottleibrand and @danamlewis recommend
But if you want to do it all by yourself you can like me...that image I provided a link for was for the visually impaired members
You're welcome 😀
They say that they are pretty close to getting the chest X-ray order....just FYI
Mikyla
@divishinating
Jun 08 2015 18:56
I just joined this chat half an hour ago, I need to do some serious reading to catch up on all this! :)
Toby Canning
@TC2013
Jun 08 2015 18:58
@divishinating Welcome!
I linked to a specific post that will help but it belongs to a google group/room
@divishinating Do you have a background in programming or similar?
Mikyla
@divishinating
Jun 08 2015 19:05
None at all! My t1d does. I just do all the research then he takes over when it comes to programming. I know that I'm totally out of my depth but I'm learning a tonne.
Toby Canning
@TC2013
Jun 08 2015 19:06
Awesome! That describes me pretty well, but I had to hire a programmer ;)
"tonne" british spelling... What country are you from
Mikyla
@divishinating
Jun 08 2015 19:09
I'm on the Western coast of Canada
Toby Canning
@TC2013
Jun 08 2015 19:10
Great, you're probably not too far from Dana and Scott, the founders of OpenAPS
Mikyla
@divishinating
Jun 08 2015 19:11
Not at all! I'm about an hour from Vancouver and they're about an hour from there. :)
We've just started with a pump and xdrip in the last 2 months so still getting everything figured out. Currently, I am the overnight pancreas. My bf sleeps through the Dex alarms so I find his pump (wrapped around him) and give a bolus. I would get so much more sleep if it would just do the bolus wizard without my intervention. So I'm highly motivated.
Chris Hannemann
@channemann
Jun 08 2015 19:27
@divishinating one thing to look at is the software version on your pump. @loudnate and I have 723s running version 2.4A that work with reading data and doing button presses with decocare but not with setting temp basals.
With version 2.5A, I think the options are even more limited.
You can check the version at the bottom of the status screen on the pump.
diabeticgonewild
@diabeticgonewild
Jun 08 2015 19:46
Waiting for chest X-ray...never going to get out of here...been here for four hours now
Paul Andrel
@stavlor
Jun 08 2015 19:47
@diabeticgonewild wow your still stuck there waiting, its a wonder they get anything done there
diabeticgonewild
@diabeticgonewild
Jun 08 2015 19:57
Yeah just got X-ray done. Waiting at infusion therapy now to get my port accessed. Then I can go to the lab to get blood drawn for my doctor. They were drawing like 4 tubes so it's more than the celiac gene
My doctor is only in clinic on Thursdays and either her or her physician assistant had to answer an email to authorize all of this cause the port wasn't placed at the cancer hospital
diabeticgonewild
@diabeticgonewild
Jun 08 2015 20:12
For what it's worth like a port is something you have when you get chemo which can destroy your veins or you have no access in terms of veins like me...and it has to be accessed using a special kit and certain trained nurses cause it's a central line and it can cause sepsis
Like you never can expose an indwelling central line to water either
Like they have used those infrared vein viewers on me and like ultrasounds and like IV team and stuff and they have ran out of luck...I've always had bad veins but I have been poked too much by now
diabeticgonewild
@diabeticgonewild
Jun 08 2015 20:33
Port accessed...it's actually a ton of trash but you can't really see it. Everything, even the gloves pretty much has to be sterile http://m.imgur.com/8iPSQoc
Paul Andrel
@stavlor
Jun 08 2015 20:38
wow, crazy at least they finally got you taken care of
diabeticgonewild
@diabeticgonewild
Jun 08 2015 20:44
Yeah blood finay got drawn. Now back to infusion therapy to get the port deaccessed
Been here 5 hours now. Going to have to pay $12.00 in parking...I'm not kidding either
Paul Andrel
@stavlor
Jun 08 2015 20:55
Wow, should get them to take care of parking for making you wait so long
Dana Lewis
@danamlewis
Jun 08 2015 20:55
@divishinating we are hosting some OpenAPS meet ups in seattle. Probably too far, but if you ever head this way and want to meet up, let us know!
diabeticgonewild
@diabeticgonewild
Jun 08 2015 21:03
Nah...it just sucks. I had to do this cause if my GI doctor ever needs to order labs again they will need to access my port. I usually have to go to a special unit of some sort or certain offices to get my blood drawn through my port as it's really the only viable access they can get unless they get extremely desperate or something. I got stuck like 8 times today...
I want to get out of here before rush hour but it's not looking hopeful
diabeticgonewild
@diabeticgonewild
Jun 08 2015 21:13
5.5 hours at the cancer hospital for a "standard" blood draw
So far...
Paul Andrel
@stavlor
Jun 08 2015 21:16
Wow thats crazy, be back later time to fight traffic on the way home.
diabeticgonewild
@diabeticgonewild
Jun 08 2015 21:22
See port still accessed. My hair looks bad but here's a selfie of me with a super sexy port in my chest. Also my pupils are super dilated but I'm tired. My autoimmune autonomic nervous system failure messes with my eyes http://m.imgur.com/qYULmiE
Also my left eye (although it's a mirror image in the photo) is always more dilated and larger pupils than my right eye
diabeticgonewild
@diabeticgonewild
Jun 08 2015 21:38
In a patient care room getting my port deaccessed. Grand total time spent at hospital for blood drawz
6 hours
See and I was right on parking http://m.imgur.com/Mw02ID1
Holger Sanft
@holgi13
Jun 08 2015 22:19
12$ parking? 6 hours at hospital? And you drive self home by car?
diabeticgonewild
@diabeticgonewild
Jun 08 2015 23:18
Yeah we 'muricans pretty much drive everywhere. I have a drivers license still. I don't drive when I don't feel well though. I just got home.
I'm lucky to have a drivers license. In lots of countries I wouldn't be able to get one.
Holger Sanft
@holgi13
Jun 08 2015 23:20
👍
diabeticgonewild
@diabeticgonewild
Jun 08 2015 23:20
cause of like my low blood pressure problems even though I've never actually passed out from orthostatic hypotension
I've had to like "lean against a wall" or "squat" or "lie back down" because my blood pressure drops so low that Blood flow is cut off to my optic nerve and I go "completely blind" and my heart will be palpitating and stuff
But when I go blind that's when I usually lie down or do something about jt
But it's been better lately
diabeticgonewild
@diabeticgonewild
Jun 08 2015 23:29
But it only happens when I am standing up