These are chat archives for nightscout/intend-to-bolus

18th
Jun 2015
Ali Mazaheri
@amazaheri
Jun 18 2015 00:06 UTC
@diabeticgonewild yeah, only drawback.
diabeticgonewild
@diabeticgonewild
Jun 18 2015 00:06 UTC
Actually @amazaheri I was reading a book with projects for kids and learning with with Raspberry Pi and it has really solid 5 star reviews on Amazon and it's called Adventures in Raspberry Pi. I think @danamlewis was looking for someone to have their kid learn The Pi and that seems like a good source (also possibly Lego Mindstorms which I learned to program on when I was like 10), so that might be good. But anyway, what I meant to say instead of being so long-winded was apparently in that book they referenced a way to make a Lego Raspberry Pi 2 case for your kid with instructions! I think that is so awesome and it would be a positive thing to have for your equipment! I would have loved it if I was a kid! Instructions are here! http://thedailybrick.co.uk/instructions/Building%20Instructions%20%5bRaspberry%20Pi%202%5d.html
Ali Mazaheri
@amazaheri
Jun 18 2015 00:07 UTC
Awesome!
diabeticgonewild
@diabeticgonewild
Jun 18 2015 00:08 UTC
Yeah it's a positive thing to associate with the stuff that comes along with diabetes.
I would share the book with you all but like I signed this agreement that says I can't and on every book I download there is this really scary legal notice telling me the legal penalties if I did. It's like fingerprinted in a way that they can figure out it's me, even though digital rights management is removed. However I am glad to have that service. Yay for having a print related disability (courtesy of a rare autoimmune disease)
But yeah can't share it, which sucks. But lego case=super coll
diabeticgonewild
@diabeticgonewild
Jun 18 2015 00:50 UTC
OK so the ultimate guide to building Lego Raspberry Pi cases is here! https://pi.gate.ac.uk/pages/legocases.html
diabeticgonewild
@diabeticgonewild
Jun 18 2015 01:01 UTC
You can also use transparent bricks!
legopicase.jpg
Ben West
@bewest
Jun 18 2015 01:19 UTC
yeah, I really want a lego one
diabeticgonewild
@diabeticgonewild
Jun 18 2015 01:20 UTC
:-) ! Do it Ben!
I'm going to. My inner kid is getting excited!
diabeticgonewild
@diabeticgonewild
Jun 18 2015 01:28 UTC
diabeticgonewild
@diabeticgonewild
Jun 18 2015 01:52 UTC
Just working on the writeup...
diabeticgonewild
@diabeticgonewild
Jun 18 2015 02:05 UTC
And I feel good tonight. :) it's nice not to be like FML cause I don't feel well ever or something
justinr1234
@justinr1234
Jun 18 2015 16:06 UTC
So has anyone tested accuracy of medtronic vs dexcom personally?
diabeticgonewild
@diabeticgonewild
Jun 18 2015 16:16 UTC
Not directly. I like the Dexcom better by far...
diabeticgonewild
@diabeticgonewild
Jun 18 2015 16:44 UTC
I hate charging my insulin pump...
Dana Lewis
@danamlewis
Jun 18 2015 16:45 UTC
@justinr1234 accuracy - you mean sensor, or insulin output accuracy?
diabeticgonewild
@diabeticgonewild
Jun 18 2015 16:45 UTC
My twin brother when I got the t:slim said "wow, this insulin pump looks a lot less ghetto!"
It's nice though when you get a self-esteem boost when you get a better looking insulin pump though...
Paul Andrel
@stavlor
Jun 18 2015 17:08 UTC
@justinr1234 I've used both, Think Medtronic needs to do some work on Enlite for it to be less of an annoyance and more of a help, The Dexcom is 95% of the time with in a few points of the meter readings, Enlite for me had alot of accuracy issues where isig would drop like a rock in the middle of the night resulting in my pump suspending when my bg was just fine resulting in me waking up in the 200's lets just say I haven't had TS turned on in a while but I don't use Enlite anymore anyway too many issues with bad sensors.
Pete Schwamb
@ps2
Jun 18 2015 17:10 UTC
@justinr1234 We’ve switched back and forth (medtronic -> dexcom -> medtronic). The medtronic sensor is smaller and less painful (in both my and my daughter’s estimation). We have seen dropouts like @stavlor mentioned, but those have been rare for us. Otherwise, accuracy seems fairly similar.
Paul Andrel
@stavlor
Jun 18 2015 17:17 UTC
@ps2 Yeah other than the sensor issues i had when it was working it worked well, before the last order i got of them i had maybe 1-2 bad sensors out of the 3 month supply but in the last batch i had almost 2 boxes that lasted less than 3 days so i said enough and moved to Dexcom
Dana Lewis
@danamlewis
Jun 18 2015 17:21 UTC
+1 re all related to Medtronic sensors issues. I used Medtronic before Enlite, Navigator, and Dexcom (G4) - Medtronic did absolute worst in terms of catching swings (drops or surges) and overall accuracy was very low. I would have a hard time imagining using AP with their older sensors, but presumably Enlite & later generations are better.
Paul Andrel
@stavlor
Jun 18 2015 17:23 UTC
@danamlewis yeah hopefully they try and fix some of those issues before the 670G/640G
Well with the FDA god knows how long that will take to get approved anyways
Dana Lewis
@danamlewis
Jun 18 2015 17:23 UTC
@stavlor yep. I have a friend who did a 640G trial and thought it was much better than previous gen Medtronic sensors; she's also about to start a 670G trial. I suggested she still wear her Dexcom to compare accuracy & she's planning to do that so we can compare w/ new sensors.
Pete Schwamb
@ps2
Jun 18 2015 17:24 UTC
Yeah, I should clarify we use the newer enlite sensors on a 640G
Paul Andrel
@stavlor
Jun 18 2015 17:25 UTC
@danamlewis nice I know with the 640/670 i think they are on Enlite v3 or v4 where thanks to the FDA think medtronic can still only sell v1 here in the us
Toby Canning
@TC2013
Jun 18 2015 17:25 UTC
@ps2 How did you get the 640G?
Paul Andrel
@stavlor
Jun 18 2015 17:26 UTC
@ps2 nice, From what i've heard from a few people that had 640G's smartguard is nice
Pete Schwamb
@ps2
Jun 18 2015 17:27 UTC
oops, I meant 530G.
Toby Canning
@TC2013
Jun 18 2015 17:28 UTC
I thought you maybe took a trip to Australia or something--which would be fun
Pete Schwamb
@ps2
Jun 18 2015 17:28 UTC
:)
Does sound like fun… hmmm….
Paul Andrel
@stavlor
Jun 18 2015 17:29 UTC
Only thing with that is i think the CC1111 is useless with the 640/670 cause they moved to 2.4Ghz not sure if they have anything on 868/916
Toby Canning
@TC2013
Jun 18 2015 17:30 UTC
I want the 670G for our kiddo.
I will skip the 640G altogether
Paul Andrel
@stavlor
Jun 18 2015 17:31 UTC
I've heard they still need to do some algorithm work on the 670G but I'm sure they will get there eventually
Dana Lewis
@danamlewis
Jun 18 2015 17:31 UTC
@TC2013 more than OpenAPS? I'd want a free trial to watch & wait & see if it really works, given some iffy things I've heard about smart guard and low threshold suspend to date...
Toby Canning
@TC2013
Jun 18 2015 17:31 UTC
@danamlewis You are absolutely right
If/when we get the RileyLink working, we may be able to outperform anything Medtronic will do for the next 3 -5 years
That would be awesome.
Paul Andrel
@stavlor
Jun 18 2015 17:34 UTC
Speaking of that my warranty is up on my pump at the end of the year need to decide what to replace it with
diabeticgonewild
@diabeticgonewild
Jun 18 2015 17:48 UTC
I want a trial too but 30 days is too short to evaluate accuracy...you really need at least 90-120 days and that would be good for testing hbA1c too.
Also actual hypo incidents too.
Dana Lewis
@danamlewis
Jun 18 2015 17:53 UTC
30 days would be enough IMO. (Definitely better than nothing). After it's out on the market, they'll have likely proven a1c, but 30 days would be enough to see if it does what you need it to
diabeticgonewild
@diabeticgonewild
Jun 18 2015 20:35 UTC
True about proven in clinical studies but there can always be flukes with products. I like having time to make decisions with expensive purchases whether my insurance company pays for it or I do. Like for example the Navigator was the best CGM I used, but it was designed like an electronics device that you would but doe
But for 10 bucks at Walmart
Sorry typing on my phone *buy
I also don't fit into the "typical" T1D profile and I'm ineligible for clinical studies for the very rare form of autoimmune autonomic neuropathy that I have, because of diabetes. The NIH/US government pours millions of dollars for the rare disease that I have that was discovered in 2000 on US government funds. It's really unfortunate that I can't participate in that kind of stuff cause I'm an outlier and exceptional.
Also cause I don't fit into the typical profile some things work for me and tons of things don't. I'm really in no man's land
diabeticgonewild
@diabeticgonewild
Jun 18 2015 20:42 UTC
So far the ganglionic nicotinic acetylcholine receptor antibody is the only proven antibody to cause autoimmune autonomic neuropathy (there are several though that are consider markers) and only 40-50% of those with my disease have those antibodies. I'm extremely lucky that this has been proven, the test exists, and most importantly, I tested positive for it at abnormal levels.
Otherwise this stuff that I am going through would likely be blamed on my diabetes.
diabeticgonewild
@diabeticgonewild
Jun 18 2015 20:50 UTC
Otherwise this stuff I am going through would likely be blamed on my diabetes.
justinr1234
@justinr1234
Jun 18 2015 21:42 UTC
So my insurance is crazy good and I managed to get basically 1 of everything
I'm wearing 2 dexcom transmitters with 2 receivers ... the new one with share and the one right before that with the firmware upgrae ... then the 530G with enlite
So far I'm going to have to give "rate of change detection" to the 530G enlite sensor
diabeticgonewild
@diabeticgonewild
Jun 18 2015 21:43 UTC
Yeah while I have no pain today (I have a freakishly unusually high pain tolerance too...like pain doesn't really "register" in my brain unless it's extreme. For example like I have broken my arm and foot before on separate occasions and I have used them relatively normally for like even weeks until my parents forced me to "go to the doctor" and get X-Rays), Lyrica (medicine) is like impairing both my short and long term memory and making me sleepy. I also think my other disease, chronic inflammatory demyelinating polyneuropathy (which is distinct from diabetes-related garbage by the fact that it causes noticable progressive muscle weakness which would be found in a neurological exam), is flaring up, as it tends to with heat, cause I feel "weaker" (I'm not absolutely sure though) and I am getting abnormal nerve sensations, like "cooling" in my feet, so I'm not sure yet if I should contact my neurologist and rheumatologist. Also, my heart rate when I exert myself is ridiculously high today too but maybe I'm not hydrating myself or something. When I was just standing up and it was like 156 beats per minute. To top it off, I'm out of tincture of opium, for a dehydrating GI problem, and my GI doctor who writes the prescription is out of the office. The hospital that I see her at is a cancer hospital so her nurse is trying to find a doctor with the "right prescription pad", as it is a very controlled substance and the doctors at the GI center don't usually have that type of prescription pad. Additionally her nurse practitioner told me to take Immodium, which doesn't do **** for my GI problem. Lomotil (when I take "double the recommended dose", as my GI doctor has written the prescription before) kind of works and I'm out of that.
justinr1234
@justinr1234
Jun 18 2015 21:43 UTC
also, I've noticed (which is accurate with the documentation instructing this) ... the accuracy of the 530G is supposedly within 1% when calibrating 4 times or more daily
diabeticgonewild
@diabeticgonewild
Jun 18 2015 21:43 UTC
That sounds awesome! @justinr1234
justinr1234
@justinr1234
Jun 18 2015 21:43 UTC
which is actualy better than dexcom
I've also noticed wearing 2 decom sensors in different spots they can sometimes vary wildly
for instance last night
one said 63 and double down arrow
diabeticgonewild
@diabeticgonewild
Jun 18 2015 21:44 UTC
Yeah, I read a study that you are supposed to calibrate every 6 hours like clockwork, for best results
justinr1234
@justinr1234
Jun 18 2015 21:44 UTC
the other said 178 and single up arrow
while the 530G said 135 and steady
diabeticgonewild
@diabeticgonewild
Jun 18 2015 21:44 UTC
It was on IEEE. I need to find it.
justinr1234
@justinr1234
Jun 18 2015 21:44 UTC
I took 2 finger sticks and got 133 and 141
diabeticgonewild
@diabeticgonewild
Jun 18 2015 21:45 UTC
But I had problems with the Enlite sensors. Like clockwork, at 3 days, the ISIG would "drop significantly". I was using a 530G too.
justinr1234
@justinr1234
Jun 18 2015 21:45 UTC
530G information: http://i.imgur.com/lpgRqIJ.png
My main concern is that all 3 sensors ... I've seen wildly different MARD than claimed
I've seen up to 45%
even with consistent calibration
diabeticgonewild
@diabeticgonewild
Jun 18 2015 21:45 UTC
Yeah, what glucometer/meter are you using?
justinr1234
@justinr1234
Jun 18 2015 21:45 UTC
in addition, the finger stick meters show wildly different problems
I generally test at least 2 times eveyrtime I test
diabeticgonewild
@diabeticgonewild
Jun 18 2015 21:46 UTC
Supposedly Abbott Freestyle Freedom is the best in studies, and the journals are "free viewing"
justinr1234
@justinr1234
Jun 18 2015 21:46 UTC
I'm using 3 different finger meters .. but I"ve been using Freestyle Lite more often than not ... due to clinical studies purporting it has the highest accuracy
I have both a freestyle freedom and freestyle freedom lite
I"ve noticed the readings on both are similar ... which is in line with clinical findings
diabeticgonewild
@diabeticgonewild
Jun 18 2015 21:46 UTC
Freestyle Freedom Lite is supposedly slightly more accurate than the Freestyle Lite, but I prefer the Freestyle Lite
justinr1234
@justinr1234
Jun 18 2015 21:47 UTC
I'm using all 3
they're fairly similar
the biggest thing is taking at least 2 readings per time ... if not 3 if necessary
if I take 2 readings and they're the same ... I don't do a 3rd
similar logic aorund my 3 CGM sensors
I've noticed the 530G is actually better (when calibrating more than 4 times a day) at predicting rise/fall
and predicting low/hihg
the Dexcom is actually slower to pick up the changes
even though the Dexcom is generally more accurate
for instance, if I have a slow crawl from 160 to 95 over 1.5 hours
the dexcom won't alert me until it reaches my low thresh (85)
whereas the Medtronic would alert me 15-30 minutes earlier
I've avoided multiple lows and highs by wearing the 530g WITH the dexcoms
(not in place)
diabeticgonewild
@diabeticgonewild
Jun 18 2015 21:50 UTC
I can only get "6 tests per day" from my endo and I'm "on the radar" with my insurance company (Medicare--I'm on disability and it's really only my business but I intend on getting off someday) cause I get "more than 3 test strips per day". Like my endo "medical record" gets "audited" (even several times) and I have to provide "proof" that I test 6x/day, with records, no matter what, and I cannot have fewer than 6 records written down. Also, if I don't provide the records to my endo Medicare goes after my endo, NOT ME
Even with severe gastroparesis and autoimmune autonomic failure, my endo is only able to justify 6 tests per day
But I have phenomenal secondary insurance (completely private), which includes health, prescription, dental, and vision. I was able to stay on past the age of 26, as a disabled dependent.
justinr1234
@justinr1234
Jun 18 2015 21:52 UTC
I have really good insurance ... I also keep meticulous records written up at any minute for my doctor if for some reason there was ever a need to justify all the stuff I get
lol
With Obamacare my private insurance basically just said "screw it" and opened up anything that the doctor writes a prescription for
and my doctor will write anything I want
(for diabetes)
lol
diabeticgonewild
@diabeticgonewild
Jun 18 2015 21:53 UTC
But if there is no "billing code" for HCPCS for like Medicare (such as with the 530G--not CGMs) My secondary can't pay for the "denied item from Medicare" as there was no EOB. Hence I would have to pay completely out of pocket for the 530G.
justinr1234
@justinr1234
Jun 18 2015 21:53 UTC
Big point here, I was curious what other poeple saw between Medtronic / Dexcom
diabeticgonewild
@diabeticgonewild
Jun 18 2015 21:53 UTC
It's a rare occurrence though.
justinr1234
@justinr1234
Jun 18 2015 21:53 UTC
Relying on an APS with incorrect CGM data seems like it could suck pretty bad
:)
diabeticgonewild
@diabeticgonewild
Jun 18 2015 21:53 UTC
Yeah, being diligent and attentive helps.
justinr1234
@justinr1234
Jun 18 2015 21:53 UTC
the 530g has a HCPCS code
diabeticgonewild
@diabeticgonewild
Jun 18 2015 21:54 UTC
It does now?
it's the same as the other pumps
diabeticgonewild
@diabeticgonewild
Jun 18 2015 21:54 UTC
I have a 530G but I upgraded my pump before my warranty ran out and I was "entitled to" Medicare.
Yeah, I got this letter from Medtronic saying they had a dispute with Medicare and if I was using Enlite sensors they would pay for it until Medicare fixed their garbage
That went on for like 6 months apparently cause Medicare takes forever.
Yeah, before the HCPCS code was different for the Enlite, probably cause Medtronic wanted more money for reimbursement. And they said to me that it would be "unethical" for them to change the code for reimbursement
Like I have an out-of-warranty 530G, and Medicare paid for my t:slim, because I had an out-of-warranty pump and I had just gotten medicare like 4 months before that.
justinr1234
@justinr1234
Jun 18 2015 22:00 UTC
t:slim is so much beter than the others
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:00 UTC
Like, my date for my "disability decision" goes back to when I was 21 (I'm 26 now). I applied once, and I didn't have to "appeal" any decisions because it was approved on "the first try". Also, I applied a month before I turned 24 because to stay on my (currently) secondary insurance, I had to prove that I was "disabled" and that was really the only objective proof that was strict and not subjective (the SSA has strict requirements). Also, when you fill out the forms required for my secondary insurance to stay on past the age of 25, they ask you if you are on disability and get Medicare.
Toby Canning
@TC2013
Jun 18 2015 22:00 UTC
:point_up: June 18 2015 4:53 PM I'm not sure it would be any less safe than relying on your pump basals alone???
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:00 UTC
So it wasn't like I was abusing the system, but it's my business.
Could you be more specific @TC2013 ? I don't know what you are trying to say, specifically.
Ben West
@bewest
Jun 18 2015 22:01 UTC
was reply to someone else's comment
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:02 UTC
Yeah, I know. I know he's trying to say that if you only rely on basals, that you can "get by" but IDK...
Toby Canning
@TC2013
Jun 18 2015 22:02 UTC
Having an APS running off a CGM that lags or is 20-30 points off is no worse than (if not better than) just relying on your pre-programming basal rates to do the job
justinr1234
@justinr1234
Jun 18 2015 22:03 UTC
I'm more referring to the case where it's waaaay off
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:03 UTC
Yeah, I would agree. It's also a matter of finding "tolerances".
justinr1234
@justinr1234
Jun 18 2015 22:03 UTC
for instance when I had 1 sensor reading "you're going high" and another reading "You're going low" and another reading "You're fine"
Toby Canning
@TC2013
Jun 18 2015 22:03 UTC
Absolutely, but I think that's where the raw data becomes very important
It usually tells one when things are amiss. That and the signal noise
justinr1234
@justinr1234
Jun 18 2015 22:03 UTC
ah
I haven't seen raw data yet, so maybe I need to see that before I can form a better opinion
:)
Toby Canning
@TC2013
Jun 18 2015 22:04 UTC
Don't get me wrong, your focus on CGM accuracy is extremely important
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:04 UTC
You could program a controller in MATLAB with articles from IEEE, and using that data, "detect flukes". Using a hotspot on your phone and having WiFi on the Raspberry Pi, you could SSH between MATLAB and the Pi
justinr1234
@justinr1234
Jun 18 2015 22:04 UTC
I never want to see matlab again
I despise it :)
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:04 UTC
Do you have access to IEEE xplore @justinr1234 ? I do and I have access to tons and tons of articles.
justinr1234
@justinr1234
Jun 18 2015 22:05 UTC
Nope
Ben West
@bewest
Jun 18 2015 22:05 UTC
some interesting benchmarks here http://julialang.org/ ;-)
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:05 UTC
I <3 MATLAB. Can't get enough of it, even after Barr's tests.
Like ECE 1331 , I got an A- out of it. Second highest grade in the class, of 144 students. :)
Toby Canning
@TC2013
Jun 18 2015 22:05 UTC
@justinr1234 Hook up to the xDrip uploader (super simple) to your Share receiver. You'll need a mongo account (free) to upload data to and you can view it with NS.
The raw and signal noise are both displayed
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:06 UTC
Like I was in Seattle on a trip, not giving one **** that I was kind of on vacation, just waiting for the grades to come in for my classes.
justinr1234
@justinr1234
Jun 18 2015 22:06 UTC
Ya, I planned to do that soonish ... just balancing out trying hardware + life + researching for APS
now that I have all this hardware ordered and I'm testing it out ... next step was a xDrip
Toby Canning
@TC2013
Jun 18 2015 22:07 UTC
Understood
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:07 UTC
I was desperately checking my phone, and I was like yay OMG I probably have what it takes to be an engineer (but I still had to get through my weed out classes like Circuits, Electromagnetics, and Electronics :/ )
And like not caring at all that I was on a trip. Then all I did that trip was plan out in my mind how I was going to get through my next set of weed out classes with some of my friends who also passed.
Pete Schwamb
@ps2
Jun 18 2015 22:08 UTC
@justinr1234 Be careful about over-calibrating (too many calibrations) the 530g in the first 12-24 hours, though. For some reason we’ve gotten it quite confused when doing so, and the tech we talked to admitted it can get wonky if given too many calibration points in the 12 hours or so. I view that as more of a software bug than anything.
justinr1234
@justinr1234
Jun 18 2015 22:09 UTC
thanks for the heads up
Biggest gripe with 530G is the range on it
pretty garbage for their wireless communications
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:09 UTC
I've been on multiple vacations like that. Not giving one **** that I was on vacation, seeing my grades, and being elated. Also, cause I have multiple medical problems I would be like looking back "how the **** did I manage to do that?!" and then planning out my next semester.
Toby Canning
@TC2013
Jun 18 2015 22:09 UTC
Yes, that and they don't last quite as long as the Dexcom sensors
Less sticky?
justinr1234
@justinr1234
Jun 18 2015 22:10 UTC
sticky?
what?
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:10 UTC
I have had multiple bad MiniLink (or whatever they are called transmitters)
Toby Canning
@TC2013
Jun 18 2015 22:10 UTC
For whatever reason, they fall off sooner on our kiddo
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:10 UTC
The "taping technique" on the 530G with Enlites affects accuracy.
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:10 UTC
You want the sensors to be "taped loosely".
I sweat profusely and I exercise a TON ... so if I didn't use all this extra stuff they'd fall off day 1
my dexcom is sweated off after 1 exercise session
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:11 UTC
Search for like "insulin pump forums" and the first hit should take you to a site with CGM forums and there is lots of useful information on Enlite.
justinr1234
@justinr1234
Jun 18 2015 22:12 UTC
I've found the tegaderm + skintac is the best combo after trying a ton of stuff
Toby Canning
@TC2013
Jun 18 2015 22:12 UTC
@diabeticgonewild how come you want them taped loosely?
justinr1234
@justinr1234
Jun 18 2015 22:12 UTC
the 2 bind together and force the dexcom to stay on
Toby Canning
@TC2013
Jun 18 2015 22:12 UTC
@justinr1234 Where do you wear your sensors
Pete Schwamb
@ps2
Jun 18 2015 22:12 UTC
@justinr1234 do you do tegaderm on top of the sensor as well?
justinr1234
@justinr1234
Jun 18 2015 22:13 UTC
I wear them all around my stomach / sides .... I put the tegaderm on top as well
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:13 UTC
Yeah, if you sweat a lot I would recommend kinesiology tape (elastic cloth tape), particularly the Rocktape H2O version which have double the amount of adhesive as the standard Rocktape, which seems to work well. I used to run in Houston in the "dead heat of summer" with an Omnipod on my abdomen and it would stay perfectly fine using kinesiology tape. After I sweated profusely after a long run, I would wait for the tape to "dry off" from my sweat, and then I would remove it and replace it with new tape.
Toby Canning
@TC2013
Jun 18 2015 22:13 UTC
Do you ever try the back of your upper arm?
justinr1234
@justinr1234
Jun 18 2015 22:13 UTC
before I got this awesome insurance I was wearing my Dexcom sensors for 30+ days without a lot of issues
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:14 UTC
Like applying it longitudinally on your body is the best way, especially in areas that tend to flex.
justinr1234
@justinr1234
Jun 18 2015 22:14 UTC
the tegaderm stayed on without any peeling
@TC2013 I haven't yet, but that's my test for next week ... going to wear 1 in my stomach, 1 on my arm, and the Medtronic somewhere near my back
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:15 UTC
Also, tape can't compress, once it's applied, so you want to "stretch your skin" (for example flexing your abdomen out and bending it like you are doing the "exercise technique" known as "bridges") and apply it while you are doing that.
Ben West
@bewest
Jun 18 2015 22:15 UTC
I put it on fattiest part of back of arm I can, I got 41 days out of one sensor
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:15 UTC
Just a sec @TC2013 , let me find the post about "taping technique" but I found it very true with the 530G
Toby Canning
@TC2013
Jun 18 2015 22:15 UTC
Are you logging start times and calibrations times? If yes, will you post your results somewhere?
Ben West
@bewest
Jun 18 2015 22:15 UTC
pump site, I put on back now
justinr1234
@justinr1234
Jun 18 2015 22:15 UTC
I'm not logging it manually ... but doesn't the dexcom log that?
Ben West
@bewest
Jun 18 2015 22:16 UTC
just whatever is in device, so it's hard to tell
justinr1234
@justinr1234
Jun 18 2015 22:16 UTC
I didn't really check that first
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:16 UTC
I'm allergic to all tapes, guys, so I have to use hydrocolloid dressing (such as DuoDerm) which nobody can be allergic to. The key is using hydrocolloid dressings.
justinr1234
@justinr1234
Jun 18 2015 22:16 UTC
hmm ... I'll keep track manually then
@diabeticgonewild there's also hypoallergenic Tegaderm
Ben West
@bewest
Jun 18 2015 22:16 UTC
this one has been in almost 30 days
Toby Canning
@TC2013
Jun 18 2015 22:16 UTC
@bewest That's the longest I've ever heard.
Ben West
@bewest
Jun 18 2015 22:16 UTC
but sensor is dying every day :-(
justinr1234
@justinr1234
Jun 18 2015 22:16 UTC
I've seen somewhere over 30 days, but I didn't keep track
Ben West
@bewest
Jun 18 2015 22:17 UTC
it was falling off, in poor shape
justinr1234
@justinr1234
Jun 18 2015 22:17 UTC
I realized that I don't like the hole it leaves .... and also now it doesn't matter I can swap them all the time lol
I'm going to keep a better log along with my data for calibrating, position, etc...
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:17 UTC
Also, flovent inhaler sprayed on your skin supposedly helps (I get it from a sketchy online pharmacy that's overseas, but I'm just applying it to my skin and supposedly the meds from there are legit, but I don't go further than that with taking risks.)
justinr1234
@justinr1234
Jun 18 2015 22:17 UTC
I'll probably start keeping a blog of my tests
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:17 UTC
My dermatologist gives me steroid cream though which kind of works
Toby Canning
@TC2013
Jun 18 2015 22:17 UTC
That would be great
Ben West
@bewest
Jun 18 2015 22:17 UTC
I get itchy from the adhesives on the tapes
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:18 UTC
@justinr1234 , I'm allergic to all tapes. All versions of Tegaderm.
Ben West
@bewest
Jun 18 2015 22:18 UTC
I wash the area clean, scrub it with skin-tac wipe, let dry, then apply sensor
thing is not coming off
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:18 UTC
You should consider going to a dermatologist @bewest if it bothers you... My dermatologist's husband prescribes the most Dexcoms in the state I live in so she's cool and will hook me up with stuff
Ben West
@bewest
Jun 18 2015 22:19 UTC
I don't use any tapes now
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:19 UTC
Like for cleaning the "redness" from the solute adhesive, you're supposed to use Cetaphil
Ben West
@bewest
Jun 18 2015 22:19 UTC
the medtronic adhesive is much worse somehow
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:19 UTC
Agreed
Ben West
@bewest
Jun 18 2015 22:19 UTC
I just use the skin-tac and it works great
I remove it with unisolve
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:19 UTC
Yeah, it's a barrier too.
But I'm allergic to all adhesives.
Toby Canning
@TC2013
Jun 18 2015 22:20 UTC
I wonder why they don't make a few kinds of adhesives on their sensors and allow the user to pick their favorite?
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:20 UTC
Except hydrocolloid dressings.
The hassle from the FDA
Whenever they change anything, they have to talk to the FDA. All med device companies have to be in almost constant contact with the FDA. Trust me on that.
justinr1234
@justinr1234
Jun 18 2015 22:21 UTC
also if anyone is interested, I ordered this and it's absolutely great: http://www.tandemdiabetes.com/Products/Accessories/
the pouch
at the bottom
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:21 UTC
You can use "double sided" medical tape, remove the Dexcom dressing, and apply your own. There's a post on children with diabetes of somebody who did that.
justinr1234
@justinr1234
Jun 18 2015 22:21 UTC
t:pack case
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:22 UTC
I'm working on finding the posts for those things @TC2013 ...just distracted
justinr1234
@justinr1234
Jun 18 2015 22:22 UTC
I also use unisolve/skintac combo .... it's great
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:22 UTC
t:pack looks cool, but I use a roll-up cosmetic bag. Works well for all diabetes supplies.
I use a hanging organizer bag, it's really nice to organize all of my diabetes supplies and it works really well when traveling. I have something like this, but you get the point. I highly recommend them, but this is way too feminine for the dudes but like Target/Walmart/Container Store sells them http://www.verabradley.com/product/hanging-travel-organizer/pink-swirls-flowers/1003738_200370.uts?fromSearch=1
Toby Canning
@TC2013
Jun 18 2015 22:25 UTC
@justinr1234 Which is better the freestyle lite or freestyle freedom lite?
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:26 UTC
This is expen$ive (made in France) but there are custom meter cases, even for the particular meter you use, and you can personalize the meter case. I want one of these. http://www.diabete-seven.com/en/
justinr1234
@justinr1234
Jun 18 2015 22:26 UTC
I don't have my freedom lite yet ... only freedom ... freedom lite in the mail
so far the freestyle lite and freedom are similar
Dana Lewis
@danamlewis
Jun 18 2015 22:27 UTC
@TC2013 oh I wish (re: letting users pick from multiple options :))
justinr1234
@justinr1234
Jun 18 2015 22:27 UTC
I like that hanging organizer
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:27 UTC
Looking for those two posts now.
Hahaha! Yeah hanging organizers are awesome for diabetes supplies!
justinr1234
@justinr1234
Jun 18 2015 22:28 UTC
I like the t:pack because it's big enough but not too big
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:28 UTC
Yeah, it's good for like the basics that you need on a daily basis.
When I "go wild" with my diabetes and I develop bad habits, reading this book and following it always sets me straight with getting back into the routine of things (I have "free access" to it via Bookshare though...) http://www.amazon.com/Complete-Diabetes-Organizer-Stressful-Manageable/dp/1938170261/ref=sr_1_1?ie=UTF8&qid=1434666493&sr=8-1&keywords=diabetes+organizer+book
Something to keep in mind...it's geared towards T1D, and it helps you get into the routine of things
justinr1234
@justinr1234
Jun 18 2015 22:30 UTC
I'm not normally OCD, but I"m OCD about diabetes :)
hence why I ended up in this chat room and whatnot ;)
Yeah hahaha OCD.
I get that way about numbers, in general. I'm wired to like math and I am unusually good at it...
But I haven't gotten carried away with it in like a month. I'm was working on a project that I called #VirtualPancreas , but I'm working on #OpenAPS now as the goals are more tangible....
back to finding those two posts for @TC2013
@TC2013 , Re: Enlite Taping, read the third post. I would agree with that dude. http://www.insulinpumpforums.com//index.php?showtopic=5901
justinr1234
@justinr1234
Jun 18 2015 22:34 UTC
2x Finger Sticks on Freestyle Freedom = 184 ... 530G = 156 ... Dexcom G4 (without share) = 125 ... Dexcom G4 (with share) = 143
Toby Canning
@TC2013
Jun 18 2015 22:34 UTC
@diabeticgonewild Thanks!
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:35 UTC
You're welcome :-)
justinr1234
@justinr1234
Jun 18 2015 22:35 UTC
also the Medtronic predicted high 30 minutes ago
(I"ve been slow crawling for the last 1.5 hours)
After calibration, both Dexcoms now read 170
530G reads 159 (for now)
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:36 UTC
@TC2013 here's the meticulous taping technique if you're extremely allergic to the Dexcom tape. However, if you are allergic to the metal in the sensor probe you're out of luck. http://forums.childrenwithdiabetes.com/showthread.php?73114-Successful-use-of-Dexcom-w-adhesive-allergy
justinr1234
@justinr1234
Jun 18 2015 22:36 UTC
I rarely see more than 10 variation between Freestyle Freedom finger sticks
mg/dl
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:39 UTC
This message was deleted
Shoot I deleted the message
@TC2013 @justinr1234 because you live in hot climates and you might deal with sweating a lot, look at these posts from "Darryl" (control+f or command+f). They're gold. He also created the text messaging service that interfaces with Nightscout and he is an engineer.
  1. http://forums.childrenwithdiabetes.com/showthread.php?73052-Skin-Tac-for-DexCom
  2. http://forums.childrenwithdiabetes.com/showthread.php?22694-Omnipod-falling-off-Question
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:45 UTC
I also talked to somebody in CGM in the cloud who was indispensable for skin allergy issues. Took screenshots on my phone and I'm about to upload the useful parts of the conversation to Imgur
fjungman
@fjungman
Jun 18 2015 22:47 UTC
Using Freedom, Freedom Lite and Omnipod PDM with same strips. Found huge reading variations a month ago and learned that old strips don't work. This was mid-May and strips dated 12/2014 and earlier were inaccurate. Used a bottle labled 5/2015 and they were within 3 points of each other. Saw no difference on Freedom/Freedom Lite, but PDM read somewhat lower. Still, can't beat the tiny amount of blood needed and the ability to keep adding blood.
Back to DIYPS/OpenAPS. I have the RPi2 and the Carelink USB on the way. Have the 522 pump. Do I need BT4 on the RPi2 to get the data from the xDrip app? I didn't see that mentioned, but I imagine that is how it is being done. Any particular brand known to work well?
diabeticgonewild
@diabeticgonewild
Jun 18 2015 22:50 UTC
Pics 1. Imgur 2. Imgur 3. Imgur 4. Imgur (not in any specific order
diabeticgonewild
@diabeticgonewild
Jun 18 2015 23:15 UTC
Nobody has created Linux drivers yet for direct Bluetooth communication with the Dexcom G4 Platinum receivers @fjungman
Well stupid me I didnt mean drivers. Instead I meant decoding on Linux
diabeticgonewild
@diabeticgonewild
Jun 18 2015 23:26 UTC
Decoding to interface with a particular driver...that's what I ultimately meant