These are chat archives for nightscout/intend-to-bolus

20th
Jun 2015
Ben West
@bewest
Jun 20 2015 00:12
wow they really put lot of stuff on there
more than what ubuntu even ships with i think
nice, now I'm only 41% used disk
plus little more
kernel:[ 4297.158683] Internal error: Oops: 17 [#1] PREEMPT SMP ARM
uh oh
lol
Ben West
@bewest
Jun 20 2015 00:39
better, 39% disk full now
Ben West
@bewest
Jun 20 2015 00:52
nice, it works
versioning/packaging doesn't quite work the way I expected
Ben West
@bewest
Jun 20 2015 01:21
latest on openaps-example is from my rpi (with tab completion working)
diabeticgonewild
@diabeticgonewild
Jun 20 2015 02:28
Awesome!
diabeticgonewild
@diabeticgonewild
Jun 20 2015 02:36
Went to the gym. Couldn't exert myself like I was supposed to according to physical therapy for long. Yay for fatigue from a demyelinating disease. Like the physical therapy I went to actually has guidelines for exercise for people with cardiac autonomic neuropathy (also known as dysautonomia) and I'm not supposed to put my heart rate above 140 or a rate of perceived exertion of 12 which is not hard for me to do cause I'm usually tachycardic. If so I'm supposed to stop. It actually works and I have more stamina. But yeah, when I started developing the cardiac problems at age 17 I would run with a heart rate monitor and it would register like 208....and when I was running and it was like 185 I was like yeah I'm not pushing myself hard enough and I'm not tough enough....crazy
Going to try to work on the write up as I slept all day...
diabeticgonewild
@diabeticgonewild
Jun 20 2015 02:52
But I think I might be getting weaker from a flare from the CIDP I have. Heat doesn't agree with me well. :(
But back to write up
Darrell Wright
@beached
Jun 20 2015 15:59
I have been looking at the TI EZ Chronos watch and it is really cool. Same radio as the CC111x devices used in RileyLink and MMCommander but a lower power and faster processor in the form factor of a watch with an LED display. Plus it is cheap. This combined with @ps2 's RileyLink code that looks like a Guardian
would make a nice watch for while running and keeping the pump out of the way
diabeticgonewild
@diabeticgonewild
Jun 20 2015 20:45
WTF GI doctor and primary care doctor's offices told me to go to the ER for GI problems cause nobody can write a * prescription for me
Also cause of the severity of my problems cause I don't have any medicine that works. I mean I would have took Lomotil if I didn't run out
diabeticgonewild
@diabeticgonewild
Jun 20 2015 20:50
They were worried about me being dehydrated...I don't think I am going to go to the ER but I do feel crappy but who cares
If **** at the cancer hospital didn't happen so slowly and if someone could find a doctor to write a script which I have requested for over 6 business days I wouldn't be so screwed
diabeticgonewild
@diabeticgonewild
Jun 20 2015 20:56
All cause I need a prescription when my doctor is out of the country/out of the office for 2 weeks
Like it was filled 5/11 and it lasted for over 30 days...
diabeticgonewild
@diabeticgonewild
Jun 20 2015 21:21
Going to the ER. This is super frustrating.
Not even sick.
Paul Andrel
@stavlor
Jun 20 2015 21:28
They don't have anyone to cover?
diabeticgonewild
@diabeticgonewild
Jun 20 2015 21:31
Not to write a schedule II controlled substance, which apparently requires a special prescription pad which apparently her associates don't have.
Paul Andrel
@stavlor
Jun 20 2015 21:32
Lovely
diabeticgonewild
@diabeticgonewild
Jun 20 2015 21:32
Couldn't even get Lomotil which is less regulated
Paul Andrel
@stavlor
Jun 20 2015 21:33
wow, thats ridiculous
diabeticgonewild
@diabeticgonewild
Jun 20 2015 21:33
Imodium doesn't work at all
Paul Andrel
@stavlor
Jun 20 2015 21:37
Well hope you get someone to write the script that doesn't sound fun you would think you doctor would have someone to cover for them or something
diabeticgonewild
@diabeticgonewild
Jun 20 2015 21:37
Well fortunately in Texas there are these standalone ERs that aren't attached to a hospital that are scattered around the cities. I call them a "doc in a box" like a Jack in a Box (fast food restaurant). But like if you don't go to one affiliated with a major hospital in your respective city you can get screwed cause your insurance might not cover it. I'm going to one close to my house that is affiliated to the hospital I go to and has my medical records. You typically don't wait at doc in the box ERs LOL
But it's ridiculous and it costs the same
Paul Andrel
@stavlor
Jun 20 2015 21:38
lol
diabeticgonewild
@diabeticgonewild
Jun 20 2015 21:47
Chilling in the waiting room...
If this ever happens again I swear...
ER trip #3 so far this year. It sucks. I managed to stay out of the hospital for 2.5 years prior to this January.
Ben West
@bewest
Jun 20 2015 21:51
ouch
that's rough year :-(
diabeticgonewild
@diabeticgonewild
Jun 20 2015 21:51
It happens
This trip is ridiculous though even if they end up drawing blood and I am dehydrated or something, which happens
I brought my empty bottle with me so they're less likely to think I'm playing games
Paul Andrel
@stavlor
Jun 20 2015 22:00
heh
diabeticgonewild
@diabeticgonewild
Jun 20 2015 22:18
Got a prescription for Lomotil. Better than nothing. Was told to "show my face" at the cancer hospital on Monday to get things moving
They didn't bother drawing any blood cause my vital signs were fine, which was cool. Heart rate was like 84 and like blood pressure was like 120 over something
diabeticgonewild
@diabeticgonewild
Jun 20 2015 22:25
Oh yeah 120/74...score
I get bad vital signs due to autoimmune autonomic neuropathy at times
Paul Andrel
@stavlor
Jun 20 2015 22:31
mine can be weird at times, think the last time i was at my endo it was 106/64
diabeticgonewild
@diabeticgonewild
Jun 20 2015 22:33
Yeah they wrote a prescription for less than half of what my GI doctor did for Lomotil. I'm going to take it like my GI doctor wrote it, according to an old prescription bottle. I really don't care even if it sounds sketchy. Like its sooooo bad. Like you really don't want to hear about it. Like with no meds I would drink like 4-6 liters a day just to kind of stay hydrated. Like in January when I got admitted to the hospital for low potassium levels they were flagged as critically low at like 2.5 mEq/L
But yeah left the ER...such BS
Paul Andrel
@stavlor
Jun 20 2015 22:35
used to always have issues with bp suddenly dropping for no reason but that was when they discovered that I had primary adrenal insufficiency but since starting steroids which have been upped three times so far bp is usually under normalish
damn immune system needs to stop killing things off heh
the steroids play hell on the basal rates though my sleeping vs awake is a huge difference
diabeticgonewild
@diabeticgonewild
Jun 20 2015 22:38
That's crazy. Yeah I've been tested for that multiple times. Also cause I was taking like 0.3 mg of like fludrocortisone for like orthostatic hypotension (a TON...got a lot of fluid retention) I had low cortisol levels and the lab didn't flag it as low and the ends was like WTF
•endo
I'm sure you have experienced the joys of orthostatic hypotension
I'm sure you take fludrocortisone too
But yeah that has to suck having adrenal insufficiency. Sorry you have it!
Paul Andrel
@stavlor
Jun 20 2015 22:44
Yeah I take fludrocortisone and prednisone
It could always be worse i suppose
diabeticgonewild
@diabeticgonewild
Jun 20 2015 23:08
ER wrote script for Imodium on accident, which does absolutely nothing
Waiting for them to fix their crap which they said they would at the pharmacy
I usually checked prescriptions and read them as soon as they're handed to me but I was angry already and so I was kind of on the wrong foot