These are chat archives for nightscout/intend-to-bolus

27th
Sep 2017
Dana Lewis
@danamlewis
Sep 27 2017 00:04
did you re-run setup after you rm'd git?
princesaleonor
@princesaleonor
Sep 27 2017 00:09
I'm new on Loop and I tried it on my daughter during one week but she decided to get sick on that period. Her Insulin needs almost doubled so I found it very hard to handle all this information at the same time and decided to go back to the old system. In a future situation of sickness, what should be the procedure? Should I lower the ISF or increase the max_iob?
Dana Lewis
@danamlewis
Sep 27 2017 00:10
@princesaleonor are you using Loop (iOS based), or OpenAPS?
princesaleonor
@princesaleonor
Sep 27 2017 00:10
OpenAPS
Dana Lewis
@danamlewis
Sep 27 2017 00:11
k. are you running autosensitivity (autosens)? It's designed to help w/ those situations by changing sensitivity & basals
if you are running into maxIOB cap, you may also want to bump that up
princesaleonor
@princesaleonor
Sep 27 2017 00:13
yes, but the autosens was capped at 1.2, and it wasn't enough. Since I was doing my first steps I got a bit afraid of changing to much variables at the same time and getting lost.
Dana Lewis
@danamlewis
Sep 27 2017 00:13
k. you can adjust autosens cap up temporarily (to 1.3 or 1.4 or whatever) if you feel like it was helping and want it to do more
princesaleonor
@princesaleonor
Sep 27 2017 00:17
really crazy week. daily insulin today was 11 units, usually is 6. I felt like I had to change to many variables that I decided to stop for a while. But ... I'll be back!
Dana Lewis
@danamlewis
Sep 27 2017 00:17
do what you need to do! we're to help if we can & you need info.
princesaleonor
@princesaleonor
Sep 27 2017 00:18
you and the rest of the team did a wonderful job. I don't have words to thank you and this wonderful community.
Dana Lewis
@danamlewis
Sep 27 2017 00:19
<3
princesaleonor
@princesaleonor
Sep 27 2017 00:22
this will be such a useful tool for my daughter.... I will do my best to spread the word... but first I have to find a way to tell my endo :smile:
Zakm0n
@Zakm0n
Sep 27 2017 01:39
@danamlewis I did, but I'll run it again.
Zakm0n
@Zakm0n
Sep 27 2017 01:51
.exc.InvalidGitRepositoryError: /root/myopenaps
Could not run nightscout autoconfigure-device-crud
daveklingler
@daveklingler
Sep 27 2017 02:30
@danimaniac @scottleibrand Thanks. I'm staring hard at the schematic to see whether it's possible to turn that power led off. Other than it keeping me awake at night, it's a shame to have an led like that on a battery-powered device.
Craig Brenner
@cbrenner
Sep 27 2017 02:31
Wondering if anyone has heard of or experienced problems with the Medtronic 722 pump in regard to erroneous insulin delivery. For the past few weeks, my son has had numerous high BGs after bolusing. It would take multiple large corrections plus the OpenAPS system fully cranking up his temp basals to eventual bring his number back to a normal range--over a period of hours. We have had him change sites numerous times, tubing, insulin. We were going to revert back to his t:slim and stop using the OpenAPS but ultimately decided to try a backup 722 pump we had available. After changing him over to the backup 722 everything, thankfully, normalized. I assume this may be a calibration issue with the first 722 pump mechanism. One odd thing. He had less issues with his basal overnight (i.e., he kept relatively steady). The issue primarily persisted after bolusing.
Very concerning that a pump would go out of calibration like this but my wife made a good point. For those of us who are acquiring these older used pumps from a 2nd or 3rd party, we don't know if the pump was dropped or damaged in some way. So, it very well could be caused by mishandling from the original owner versus a Medtronic mechanical or software flaw. That said, I just want to check in with everyone to see if there has ever been any similar reported problems or perhaps a 722 recall for such problems.
garykidd
@garykidd
Sep 27 2017 02:43
never heard anything--I'd make sure you aren't using recalled reservoirs first.
@scottleibrand was the radio reset always preceding mmtunes (or at least since you developed setup script?
Martin Haeberli
@mhaeberli
Sep 27 2017 03:04
@cbrenner - also check recalled infusion sets !
Scott Leibrand
@scottleibrand
Sep 27 2017 03:53
@garykidd yes, radio resets are required to get the cc1110 to work, so we've pretty much always done them.
@daveklingler the power consumption of that LED is negligible. Just put black electrical tape over it if it's too bright for you.
Craig Brenner
@cbrenner
Sep 27 2017 05:55
@mhaeberli Yes, his infusion sets are all in the clear. We actually used an infusion set he already inserted pre pump change with the replacement pump and BGs went back to the normal range. So, I'm feeling 99% confident the pump was the problem.
Niels Hartvig
@hartvig
Sep 27 2017 06:25
@scottleibrand just so I understand: So every now and then (for some reason), openaps doesn't get the zone added (when I'm cat'ing the output of the two files, it's not always that -zoned is updated)? I'll see if I can find it (still working my way around the project)
kallnap
@kallnap
Sep 27 2017 08:04
@cbrenner do you have access to a high precision lab balance, to measure insulin delivery for both pumps?
kallnap
@kallnap
Sep 27 2017 08:21
this may allow you to quantify the bolus delivery for each pump
Tore Bjørndalen
@ToreBj
Sep 27 2017 08:46
I got this today: Sep 27 10:29:19 ToresEdison pump-loop.log: Settings refreshed. Refreshed pumphistoryERROR: bad basal schedule [ { i: 0, start: '00:00:00', rate: 0, minutes: 0 } ]
Sep 27 10:33:17 ToresEdison pump-loop.log: Preflight OK. Profile less than 60m old. Temp duration >20m. Refreshed pumphistoryERROR: bad basal schedule [ { i: 0, start: '00:00:00', rate: 0, minutes: 0 } ]
Checked the basal settings on the pump and on the edison, nothing strange to be found?
Alin Artiom Kenibasov
@ktomy
Sep 27 2017 10:44
Hi, I am looking to rebuild my rig. Now it is RPI+Slice of radio+xbridge+phone. I want to make it "wearable" (edisson+exporer). So my question is, is it possible (I mean maybe someone already developed it) to connect my xdrip to edisson via BT and run xdrip application on edisson?
ah, xdripAPS, no more questions :)
Luuc
@luucv
Sep 27 2017 10:59
Checking pump clock: "2017-09-27T12:56:16+02:00" is within 1m of current time: Wed Sep 27 12:56:03 CEST 2017
and that pumphistory is less than 1m old.  Temp refreshed
Autotune exists! Hoorah! You can use microbolus-related features.
{"carbs":49,"boluses":7.9,"mealCOB":13,"currentDeviation":null,"maxDeviation":0,"minDeviationSlope":0}
BG data is too old (it's probably this), or clock set incorrectly.  The last BG data was read at Wed Sep 27 2017 11:10:00 GMT+0200 (CEST) but your system time currently is Wed Sep 27 2017 12:56:17 GMT+0200 (CEST)
  "reason": "BG data is too old (it's probably this), or clock set incorrectly.  The last BG data was read at Wed Sep 27 2017 11:10:00 GMT+0200 (CEST) but your system time currently is Wed Sep 27 2017 12:56:17 GMT+0200 (CEST)"
Checking system clock against pump clock:
Checking deliverAt: null is within 1m of current time: Wed Sep 27 12:56:30 CEST 2017
date: invalid date ‘null’
Any idea what is going wrong? No changes in time whatsoever
Out of the blue as well,
nvm seems to be this weird bug in my pump again, after a small bolus by myself it worked as usual again
Lorenzo Sandini
@lsandini
Sep 27 2017 11:06
Hello, using openaps 0.5.3 master with UAM/SMB, NS is v0.10.0-dev. Nightscout doesn't display my boluses, when given with the pump's bolus wizard. They are taken into account, both insulin and carbs, but they don't show in NS. Manual boluses show normally. I found a few references to that issue in earlier disussions, but nothing that remained unsolved. Help ?
Lorenzo Sandini
@lsandini
Sep 27 2017 11:25
The boluses given using the bolus wizard show up in the treatment page, in the Nightscout's reports... but not in the main screen
Alin Artiom Kenibasov
@ktomy
Sep 27 2017 12:17
hmm... it seems that xDripAPS is not quite what I need. maybe someone knows of an implementation where xbridge is paired with edisson via bluetooth, it receives raw values and then either calculate bg value (xdrip+ port for edisson), either sends data to a stationary android device which makes the calculation (like xDrip WIFI).
and if there is nothing like this, is there someone besides me who would need such setup?
jaylagorio
@jaylagorio
Sep 27 2017 12:20
@ktomy Do you mean with a G4 or G5?
Alin Artiom Kenibasov
@ktomy
Sep 27 2017 12:20
G4
jaylagorio
@jaylagorio
Sep 27 2017 12:21
I think someone was asking around about that yesterday. There used to be an old thing, openxshareble, which could do something like that but it needs to be updated, standardized, and then integrated. No one has gotten that working but @tazitoo might be on the case
Alin Artiom Kenibasov
@ktomy
Sep 27 2017 12:24
Thank you @jaylagorio
@tazitoo could you please elaborate more when you're here? Thank you
Tim Street
@tim2000s
Sep 27 2017 12:41
openxshareable hasn’t had much work done on it. It was pretty flakey and needs quite a lot of work to make it reliable. Scott can provide more info.
Niels Hartvig
@hartvig
Sep 27 2017 14:58
We're looking into moving from MDT to Dexcom G5 as Medtronic is super unreliable when it comes to delivery of new sensors. I know that we're spoiled with the OOTB offline looping as the pump is already the reciever too. What are people using for the minimal setup with Dexcom (both in terms of what you're carrying with you and how to work offline) (I've already read the docs but so many options to grasp)?
jaylagorio
@jaylagorio
Sep 27 2017 15:04
@hartvig Edison+Explorer, and the G5 Receiver is connected via USBOTG and a USB battery. Wifi when in range, Bluetooth to a phone for connectivity when out and about, and since everything's self-contained it works with total lack of connectivity like on a plane
There's a lipo with a switch in the case too for when I have to charge the USB battery (it doesn't supply power while charging)
Niels Hartvig
@hartvig
Sep 27 2017 15:07
Nice! Is it correctly understood that the range of the receiver is much better than MDT (which is basically inches over feet), so my son could have the Edison+Explorer+Receiver in his school bag most of the time? I've always prioritised that he has as much feeling of freedom as possible (ie. not carrying loads of things on him - I love how he just puts the Edison in his pocket atm).
kallnap
@kallnap
Sep 27 2017 15:07
@hartvig Androidphone running Xdrip+ G5, Explorer and Edison, is one option, which works for me. Android phone is BT tethering to Explorer; next best solution would in my opinion be a small xbridge (wixel) and explorer board. An Adroid phone again running xdrip+
jaylagorio
@jaylagorio
Sep 27 2017 15:08
I will say that the range of the G5 isn't as good as the G4, but is definitely better than the MDT. I keep my setup in the front pocket of a backpack when I'm out and as long as I'm within 5 - 10 feet it's pretty OK.
kallnap
@kallnap
Sep 27 2017 15:09
@hartvig there seems to be also the xdrip-js project but I do not know what the exact status is, they seem to be using the g5 transmitter directly talking to BT of the edison.
jaylagorio
@jaylagorio
Sep 27 2017 15:09
To clarify, the G5 receiver range is ~20 feet max, but you should stay closer. The Explorer is the one that's ~10 ft (in my experience).
@kallnap Yeah, appears to be very work-in-progress, I checked that out after it was talked about here yesterday
Niels Hartvig
@hartvig
Sep 27 2017 15:12
Thank you for your fast feedback, everyone. This is an amazing community - what a contrast to the "attitude" of the commercial vendors. Imagine one day where the vendors do what they do great - create the pumps and sensors, yet forced to use open standards and protocols. There's no simpler format than diabetes data (both in/out) and diabetics deserve freedom of choice and free data without weird hacks.
jaylagorio
@jaylagorio
Sep 27 2017 15:13
^^
kallnap
@kallnap
Sep 27 2017 15:14
@hartvig there are already standards for CGM Bluetooth for example , but I do not know if all vendors are compliant
jaylagorio
@jaylagorio
Sep 27 2017 15:15
Dexcom doesn't appear to be, they're stuff requires a proprietary authentication scheme
@danamlewis @scottleibrand Has anyone written up an offline-able Explorer G4/G5 build and posted it that you know of?
Niels Hartvig
@hartvig
Sep 27 2017 15:20
Ye, nothing will happen until the most powerful buyers are better educated and comes up with clearer demands (for instance in Denmark, 99%+ of all diabetes related expenses is bought by the Danish state. Imagine if they (and similar Scandinavian countries (and biggest insurance companies) said they'd stop buying products that didn't supported standards. By now it's almost only in medco and defence industries that this fight haven't been won yet :) (sorry - unrelated rant over).
Craig Brenner
@cbrenner
Sep 27 2017 15:47
@kallnap No access to a precision lab balance. That would be interesting to assess but for now, the only test we have at our disposal is to observe the resulting BGs from each pump's bolus delivery. Clearly, something is flawed with the first pump as everything is working better and as expected with the second pump.
Dana Lewis
@danamlewis
Sep 27 2017 16:09
@lsandini re-pull master; should fix your issue
@jaylagorio not sure what you mean. The current offline options known to work are all in the docs? (Best offline for G4/G5 is plugging in receiver right now unless you xdripaps)
@hartvig FYI, many of us are sticking with G4 because of raw. Tradeoff of not giving up the receiver for being out and about, but usually worth it IMO.
Jake Punshon
@JakePunshon
Sep 27 2017 16:45
i just got am email from Heroku saying I've used up 1000 free dyno hours for September. Can someone give me some insight on how I'm using so much?
Scott Leibrand
@scottleibrand
Sep 27 2017 16:47
@cbrenner @kallnap you don't need a precise scale: you can just bolus into the sink and count the drops coming off the end of the cannula for a given size bolus. That's what I did to see how much past reservoir=0 we could go before delivery was affected, and how much insulin was missed if you went all the way to a no delivery alarm.
jaylagorio
@jaylagorio
Sep 27 2017 16:55
@danamlewis Yeah, but has anyone ever written up any of those builds with pictures or anything?
Dana Lewis
@danamlewis
Sep 27 2017 16:56
written up? yes. pictures on that page? no. someone could easily add those, though. would love if people have ideas for making that page more clear to do so!
jaylagorio
@jaylagorio
Sep 27 2017 16:56
Cool!
Jake Punshon
@JakePunshon
Sep 27 2017 16:57
i just got am email from Heroku saying I've used up 1000 free dyno hours for September. Can someone give me some insight on how I'm using so much? The email says to run "heroku logs -t" to view the app's logs, but I can't figure out where to run that.
Eric
@ecc1
Sep 27 2017 17:14
It's the "Heroku toolbelt" that you run on your local machine, not your VM: https://devcenter.heroku.com/articles/heroku-cli
Niels Hartvig
@hartvig
Sep 27 2017 17:16
@danamlewis sorry for being ignorant (tried to google a little), but what is the consequence of not having "raw" on g5?
Dana Lewis
@danamlewis
Sep 27 2017 17:20
less ability to detect whether a jump or drop is noise (i.e. dying sensor) or compression low, etc.
noise.jpg
conveniently, I have a dying sensor right now. (So put a new one on to soak last night, changing it out today)
also means you can see raw data (with receiver plugged in) during the 2 hour sensor warmup
Niels Hartvig
@hartvig
Sep 27 2017 17:26
@danamlewis :thumbsup:
garykidd
@garykidd
Sep 27 2017 17:55
Anyone have any idea about whether or not we may see raw data availability on G5--thought I read about that a long while ago. Used to be that G4 felt vastly superior w/r/t connectivity, in particular, now G5 seems really good largely as a result of gaps in data being filled in once connection is re-established.
Dana Lewis
@danamlewis
Sep 27 2017 18:04
I'd ask in the xdrip-js channel; they've spent the most time looking at G5 & what's possible I think
cameronrenwick
@cameronrenwick
Sep 27 2017 18:16
@danamlewis I'm about to update to 0.6.0 today. I know that you've essentially been using "eating soon" and entering carbs, but no bolus. Safe to assume that your doing these 2 things by IFTTT buttons (I think) but wondering do you do any sort of minimal bolus at the pump?
Dana Lewis
@danamlewis
Sep 27 2017 18:16
What I'm doing now, with Fiasp and 0.6.0: not even eating soon, just entering carbs via IFTTT buttons as soon as food hits my mouth.
What I recommend starting testing with: yes, carb entry, and a partial bolus, and as you figure out how things are working, work your bolus amount down (if it's working well for you)
cameronrenwick
@cameronrenwick
Sep 27 2017 18:20
cool thx.. I've been on Fiasp for ~2 months and am using eating soon only if really required (~20% of the time) and bolus as I eat so I've got a good idea of how "I" react to Fiasp fortunately. Really looking forward to 0.6.0.. just another thing my non-T1D friends wish they could do...
Dana Lewis
@danamlewis
Sep 27 2017 18:20
:+1:
David
@davidkeddydb
Sep 27 2017 18:41
I had a loose git, fatal message so I followed all the steps, and when it still didn't resolve I did a rm -rf ~/myopenaps/.git as a final. I am now getting an error saying, Preflight git.exc.InvalidGitRepositoryError: /root/myopenaps
fail. Preflight git.exc.InvalidGitRepositoryError: /root/myopenaps Will this resolve itself? Only been 5-6 minutes now
Niels Hartvig
@hartvig
Sep 27 2017 18:43
Screenshot 2017-09-27 20.39.58.png
24h of a life with openaps and oref1, 13yr kid with growth hormones going crazy (growing ~8cm (3") / yr), intense soccer practice, 90 carb breakfast, cake. 92% in range, zero highs, zero critical lows. Never seen a day like this. oref1 is truly life changing :clap: :clap: :clap:
Automated temp basals FTW (breakfast, lunch, dinner + soccer practice + soccer match days)
:arrow_up: And today included 2hrs of intense soccer practice (junior elite level)
Dana Lewis
@danamlewis
Sep 27 2017 18:45
I hope the cake was for breakfast? :D :confetti_ball: :clap: :heart:
@davidkeddydb did you rerun setup after rm rf?
also, what branch are you on?
Niels Hartvig
@hartvig
Sep 27 2017 18:46
@danamlewis nope, that was celebration tonight. Even that wasn't a problem!
David
@davidkeddydb
Sep 27 2017 18:46
I did not rerun setup after rm rf. I will do that. I am on 6.0dev and I will PR that in
Dana Lewis
@danamlewis
Sep 27 2017 18:47
@davidkeddydb
actaully, if you're on 0.6.0 dev, follow the instructions in the PR to avoid git setup completely: https://github.com/openaps/oref0/pull/650#issue-256564183
Screen Shot 2017-09-27 at 11.48.16 AM.png
chances are you installed 0.6.0 before we called that out in the PR to get --nogit
David
@davidkeddydb
Sep 27 2017 18:49
@danamlewis No, I followed it exact and I still got the git fatal. Will retry
Dana Lewis
@danamlewis
Sep 27 2017 18:59
ok. yes, plz retry with those steps & see if that works
daveklingler
@daveklingler
Sep 27 2017 19:00
@danamlewis @scottleibrand Darn. Yesterday I finally got my BT pairing to work automatically for the first time, after two weeks of looping in small circles around my house. The victory was short-lived, though, because this morning about 9 o'clock I realized that my rig had locked up. I pulled the battery cable and restarted it, but shortly afterward my pump alarmed and told me the motor had stopped. After 3 more hours of what seems like no basal and another motor message, I can't trust that pump any more. I've gone back to an Omnipod for now while I figure out what to do next.
Dana Lewis
@danamlewis
Sep 27 2017 19:02
:(
daveklingler
@daveklingler
Sep 27 2017 19:02
Anyway, my thought was that perhaps the crashed pump had been what crashed my rig. I'm new to all of this, so I'm sure you've heard lots of similar tales, but I figured I'd put mine out there. I'm going to take apart my two old Medtronic pumps and see whether I can make one that works. I really liked getting more sleep!
Dana Lewis
@danamlewis
Sep 27 2017 19:02
motor stopped because of a kinked site (was it occlusion alarm, or actual motor?)
haven't actually heard that many, until this week someone else was saying they have a seemingly dud 722 out of nowhere
daveklingler
@daveklingler
Sep 27 2017 19:03
Hm. It just said "Motor stopped".
Dana Lewis
@danamlewis
Sep 27 2017 19:03
ok
not occlusion then probably, I don't recognize that error offhand
Scott Leibrand
@scottleibrand
Sep 27 2017 19:03
before you take them apart I would run both pumps disconnected from the body and see if they do it again
daveklingler
@daveklingler
Sep 27 2017 19:03
I suppose it could have been a kinked site. The site looks a bit swelly.
David
@davidkeddydb
Sep 27 2017 19:04
@danamlewis Yup, that did it, back to looping. @daveklingler What type of pump was it
daveklingler
@daveklingler
Sep 27 2017 19:04
Kind of like a second belly button.
Dana Lewis
@danamlewis
Sep 27 2017 19:04
@davidkeddydb yea, if the site is iffy, might be related to that
so I wouldn't necessarily tear apart that pump
daveklingler
@daveklingler
Sep 27 2017 19:04
The pump is a 715.
That's a good idea, Scott. I'll run it for a while disconnected. I've been stretching my infusion sets a long time because I'm only covered for Omnipods and Medtronic won't sell them to me. I just buy them when I can off Craigslist.
Scott Leibrand
@scottleibrand
Sep 27 2017 19:06
you can buy them from distributors without going through MDT
daveklingler
@daveklingler
Sep 27 2017 19:06
This one may have been in for a few weeks.
Scott Leibrand
@scottleibrand
Sep 27 2017 19:06
(the suppliers that insurance companies sometimes make you use)
ouch. don't do that
Dana Lewis
@danamlewis
Sep 27 2017 19:07
ahhh!
Scott Leibrand
@scottleibrand
Sep 27 2017 19:07
2 days is recommended. some people stretch it to a couple more. more than a week is asking for trouble
daveklingler
@daveklingler
Sep 27 2017 19:07
I ran into a lady who had been using them for 3 weeks since 1992. She inspired me.
Dana Lewis
@danamlewis
Sep 27 2017 19:07
:(
daveklingler
@daveklingler
Sep 27 2017 19:07
laugh
scottleibrand @scottleibrand considers adding a feature to oref0 to stop looping if it's been more than a few days since the last rewind
Scott Leibrand
@scottleibrand
Sep 27 2017 19:08
yes, it's a bad enough idea that I'd want to turn off your closed loop to make you stop doing that
daveklingler
@daveklingler
Sep 27 2017 19:08
Well...you have to rewind them every few days. They run out of insulin!
Dana Lewis
@danamlewis
Sep 27 2017 19:08
@scottleibrand probably rewinding for reservoirs so that won't work for that purpose :(
Scott Leibrand
@scottleibrand
Sep 27 2017 19:08
ah, that won't help then
Diabetic_Dude
@diabetic_dude_twitter
Sep 27 2017 19:08
@daveklingler If I go for more than 3 days I start to get knots under my skin
and it slows my absorption time down in a big way
kallnap
@kallnap
Sep 27 2017 19:08
I would be all in for a reminder for changing inf sites
Scott Leibrand
@scottleibrand
Sep 27 2017 19:09
NS does have that if you're willing to tell it when you change them
daveklingler
@daveklingler
Sep 27 2017 19:09
I get a huge lump after 3 days with an Omnipod, but Medtronic infusion sets really don't irritate me. Or barely, anyway.
Scott Leibrand
@scottleibrand
Sep 27 2017 19:09
they call it cannula age
Diabetic_Dude
@diabetic_dude_twitter
Sep 27 2017 19:09
I use my ns site. IAGE turns red when it is time to swithc BING
daveklingler
@daveklingler
Sep 27 2017 19:09
I have a knot right now, but it's tiny.
Dana Lewis
@danamlewis
Sep 27 2017 19:10
aside from the long term damage yada yada - it's obviously impacting your ability to use a pump. so....I would highly recommend considering more regular site changes in order to keep being able to use a loop able pump
Diabetic_Dude
@diabetic_dude_twitter
Sep 27 2017 19:10
yup yup yup
Scott Leibrand
@scottleibrand
Sep 27 2017 19:10
agreed. and taking a tubed-pump holiday until you get a reliable supply of sites wouldn't be a bad idea
kallnap
@kallnap
Sep 27 2017 19:10
@scottleibrand I rarely use NS on a daylie basis, mostly for reports. I would like a reminder triggered from "fill cannula"
daveklingler
@daveklingler
Sep 27 2017 19:11
I was astounded when I spoke to the woman who went 21 days at a time. But she was an early adopter, and she swore she'd been doing it since 1992. Regardless, I'll find ways to get more infusion sets, and try this pump without a me connected to it.
Scott Leibrand
@scottleibrand
Sep 27 2017 19:11
:+1:
Dana Lewis
@danamlewis
Sep 27 2017 19:11
@daveklingler might want to hop into the pay it forward group and look around for sites if you need them, but also consider using a 3rd party (Byram, etc.) to get a more regular supplier
feel free to PM me if you need other ideas
Diabetic_Dude
@diabetic_dude_twitter
Sep 27 2017 19:11
@daveklingler you can trade apples for apples on the payitforward group all day omnipods for infusion sets
I was doing it for a few months
daveklingler
@daveklingler
Sep 27 2017 19:12
Oh, hey, I would LOVE to trade omnipods. I view my Omnipod PDM as the worst consumer product I've ever used, software and hardware both.
Diabetic_Dude
@diabetic_dude_twitter
Sep 27 2017 19:13
go to the pay it forward site then you will not be disappointed
daveklingler
@daveklingler
Sep 27 2017 19:13
Um...where is the pay it forward site?
diyps?
Dana Lewis
@danamlewis
Sep 27 2017 19:13
there's a bunch of Fbk groups like "T1D PIF" and "type 1 pay it forward" etc - so if you start searching you'll likely find a bunch
haha
well, DIYPS.org DOES try to pay it forward
but in knowledge, not supplies :)
daveklingler
@daveklingler
Sep 27 2017 19:14
Oh, diyps is that fanatical Dana Lewis Person. :)
She talks about diabetes A LOT!!! Of course, as much as I'd like to stop thinking about it, or talking about it, the topic is virtually always on my mind, too. :)
Scott Leibrand
@scottleibrand
Sep 27 2017 19:15
ITYM fantastical ;-)
Dana Lewis
@danamlewis
Sep 27 2017 19:16
clearly @scottleibrand is not biased at all ;P
Scott Leibrand
@scottleibrand
Sep 27 2017 19:16
and he's definitely not fanatical.
daveklingler
@daveklingler
Sep 27 2017 19:16
Dana, you've made me ashamed that I've tried so hard to ignore diabetes instead of going 180 degrees the other direction.
Diabetic_Dude
@diabetic_dude_twitter
Sep 27 2017 19:16
daveklingler
@daveklingler
Sep 27 2017 19:17
Well, not ignore, precisely. But "get around" or "get past" would be accurate.
kallnap
@kallnap
Sep 27 2017 19:17
are infusion sets so expensive in US?
jaylagorio
@jaylagorio
Sep 27 2017 19:17
@daveklingler The other direction meaning to automate the hell out of it so you can ignore it that way?
Dana Lewis
@danamlewis
Sep 27 2017 19:17
@daveklingler naw. everyone's different. I spend way more time on diabetes now than I did my first 10 years. technology makes it way more interesting
@jaylagorio bingo :)
@diabetic_dude_twitter :+1:
daveklingler
@daveklingler
Sep 27 2017 19:20
Over the past, oh, five years or so, I've suddenly been getting clobbered, when it was really pretty easy to manage before. Und zo zat is why I have such high hopes for these rigs. But I've been alternating between hardware and software for, er, decades, so I have to ability to help out in this area once I learn the ropes.
Diabetic_Dude
@diabetic_dude_twitter
Sep 27 2017 19:20
@daveklingler that link I sent you has someone that is wanting to give away 3 boxes of silouette infusion sets
daveklingler
@daveklingler
Sep 27 2017 19:22
@diabetic_dude_twitter Thanks! I would love those sets. Unfortunately, I have to wait to be approved by the admin.
And unless I decide to trust this pump again, I guess I won't need sets until I find another one.
Diabetic_Dude
@diabetic_dude_twitter
Sep 27 2017 19:26
@kallnap insusion sets are way more expensive than they should be
at least 145 for a 30 day supply
Scott Leibrand
@scottleibrand
Sep 27 2017 19:28
it's the razor blade business model. they make all their profits on the sets, reservoirs, and other consumables, and sell the pumps basically at cost
Diabetic_Dude
@diabetic_dude_twitter
Sep 27 2017 19:28
yup
same deal with the BG test kits they are almost free but the strips cost loads of money
kallnap
@kallnap
Sep 27 2017 19:35
4k for a pump may not be exaclty at cost, but i get the point
Scott Leibrand
@scottleibrand
Sep 27 2017 19:45
there's a ton of cost that goes into making a pump (and giving it a 3-4 year warranty)
kallnap
@kallnap
Sep 27 2017 19:47
pump business seems to be a tough one, given the struggles that Tandem has
David
@david-t1
Sep 27 2017 19:48
@kallnap Yes, it must be so. Roche is exiting the US market, right? And so might Animas.
jaylagorio
@jaylagorio
Sep 27 2017 19:49
Wow, that's not great news
kallnap
@kallnap
Sep 27 2017 19:54
I only read that J&J is contemplating selling the whole diabetes care business
so you are hoping for Sooil coming back to play in US?
I guess Tandem is still to expensive for a community take over :-)
br
@brmccollum
Sep 27 2017 20:46
@cbrenner I have had a similar issue with two of my minimed pumps. The issue was the same both times, the motor was pushing out the wrong end. While disconnected, Check the small circle on the right side of the pump to make sure it isn't pushed out at all. It should be inset, not flush. If it is out at all, then the motor is pushing out. For one of my pumps that this happened to, the entire seam on the right side cracked. For the other only the circle pushed out. If there is insulin in the pump you can watch the end of your tube while pushing on the circle to test if it is compromised...if you see drops you have a problem and that pump is a bust without a major multistep resin or epoxy job. I would recommend if this is your issue (depending on your child age and awareness to monitoring something like this) not using it again. My best guess is the reason it happens (to very old pumps) is the materials that hold it together start to break down and during a large bolus there is more pressure from the size of the dose and how fast the site is absorbing dose. For a tiny basal the body has plenty of time to absorb and release pressure.
Craig Brenner
@cbrenner
Sep 27 2017 21:11
@scottleibrand @kallnap Don't think blousing in the sink and counting the drops would work. If the pump is off by, for example, 0.25 units it will be quite difficult to discern that discrepancy. And, 0.25 x 10units = 2.5units ---which is definitely enough to send you pretty high. You would still see matching drops but the amount of insulin per drop may be different and could only be determined with weight.
Craig Brenner
@cbrenner
Sep 27 2017 21:20
@brmccollum I'm guessing that may be what is going on. Such a poor design. I believe this was an A1 error that was in Medtronic documentation several years ago and they replaced a bunch of pumps. Interesting, the second pump (the one we are currently using) actually had this issue went we got it--which is why we got another pump. The first pump, on the other hand, seemed to be fine in this regard as its reservoir cap doesn't seem to move but i see that it is flush with the pump edge. Quite confusing picture. I am actually thinking I may try to epoxy the 2nd pumps reservoir cap so there is no additional movement of the cap (as it is working well now). Otherwise, we may be SOL as getting another OpenAPS or Loop compatible Medtronic pump is no easy task.
jaylagorio
@jaylagorio
Sep 27 2017 21:22
@brmccollum The thing you're describing with the stabilizing cap - pumps were recalled over that. The devices that come back have a different support thing in place. Of course if you send a loopable pump in they send it back unloopable.
But if you're experiencing the issue it's even less useful to you so maybe you want to do that and at least try to sell one or both to get another loopable pump.
Dana Lewis
@danamlewis
Sep 27 2017 21:40
FDA just approved Libre in US
Diabetic_Dude
@diabetic_dude_twitter
Sep 27 2017 21:42
@danamlewis are you interested in Libre?
more so than an updated dexcom model?
Dana Lewis
@danamlewis
Sep 27 2017 21:42
for me personally, probably not (wearing the hacked receiver over a Libre sensor seems less optimal than dex)
but know some people like the idea/option
and in general, think it'll be better for T2's & non-PWDs who want CGM-type solutions
Diabetic_Dude
@diabetic_dude_twitter
Sep 27 2017 21:43
I year you, I would like one more as a toy
Tim Street
@tim2000s
Sep 27 2017 22:14
I agree with Dana. Profile of the libre hacks is awful in terms of CGM devices and how much they stand out off arm and there’s a real question over the reliability of the 3rd party Algos in relation to data smoothing due to heat, etc that’s less of an issue with Dexcom. The other big problem with Libre is its effectiveness when high or low. It seems to have greater variation when glucose levels are >180, which can be huge issue with looping. My personal experience was that variation was a lot worse the Dexcom G5.
Saw your earlier post about spending more time on D @danamlewis - similar for me, although it’s a bit different not really spending the time on your own diabetes but technology and translating research to assist others.
princesaleonor
@princesaleonor
Sep 27 2017 22:40
I'm using Libre to loop. Libre works very well for us and the fact that it does not require calibration is very goods... sometimes we are 5 days without pricking the finger. There are improvements being made to be able to use the original readings from the official mobile app from abbot, directly to xdrip.
garykidd
@garykidd
Sep 27 2017 22:47
1 major improvement that dex could make would be to decrease height of sensor/transmitter...even if they proportionally increased width. ive had a few get caught on my sleeve...i wonder if dex knows this?